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Christmas Update

My last blog post was April 13. I have tried every day since to gracefully accept the measure of health I can wrestle from a disease process that is for now being held at bay…by a pill a day. Those pills cost my insurance company over $500 a day. The math nearly brings me to…

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Decisions Get Tougher

Outside the window an agitated crow is taunting me on this rainy Sunday afternoon. He’s telling me to sit down and write. I just left a Norman Rockwell painting in that other bedroom. There in a comfortable chair, connected to wifi, within earshot of an occasional hiss of tires over the wet county road just…

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Cancer Treatment Enters New Phase

I-10 is no picnic. Especially with miles and miles of construction, steady rain, cold temps, fog and dim-witted drivers who somehow still don’t know that if people would just use the left lane to pass and then get back over to the right, everyone would be able to travel at their preferred speed and no…

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Time to Grab the Go Bag

I’ve been quiet here since August. I know you’ve noticed. I need to talk and I hope you’ll listen. We’re at the end of another holiday season “they” said I wouldn’t get, another birthday just passed they said I’d never see. These moments would have knocked me down when I was a cancer boy. When…

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PET CT Update

Any time a cancer patient has a scan that doesn’t see active disease it is a cause for celebration. Because kidney cancer sometimes doesn’t take up the glucose used in the PET CT scan like I had today, it isn’t always the best scan to use alone for kidney cancer patients. In these case of the…

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Update on Cabometyx and Side Effects

Tom Clancy books open like a flashbang, they settle into 1000 pages of character development that feed straight into a jaw-dropping final chapter. If this cancer I’m so grateful to be able to live with was a Tom Clancy book, I would be in the character development phase. My Episcopalian peeps know it as the Green Season, the…

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Cabozantinib Arrives Tomorrow

This is a short note to let my readers know that the drug that has the best chance of making a dent in this spine tumor, Cabozantinib, arrives via overnight shipping tomorrow! I will begin taking a 60mg daily dose of this powerful drug and we’re hoping that it will begin to kill the tumor…